Share your experience of COVID-19

This page was last updated: 12/06/20

There are a large number of surveys running which aim to capture the experiences of people, organisations and communities during COVID-19. You can find a list of these below.

You can add your personal story to #OurCovidVoices to help create a clearer picture of pandemic life: 

The Guardian is also asking LGBTQ+ people to share their experiences, here.

If you’re aware of other surveys that should be on the list below, please get in touch.

The Queerantine Survey

The purpose of this research project is to understand the impact of the coronavirus global pandemic on the wellbeing of the LGBTQ+ community. We are interested in studying how members of the LGBTQ+ community are experiencing the coronavirus pandemic, including accessing and supporting their wider networks and dealing with stress. The survey asks questions about social networks, volunteering, stress, mental health, wellbeing, and sociodemographic information (education, age, occupation, etc…).

COVID-19: Tell us how coronavirus is affecting you (LGBT Foundation and Stonewall)

This survey is being carried out to help identify how LGBT communities in the UK are being affected by the current coronavirus crisis and will help to shape the support that is being provided. These responses are given anonymously and in this context, information you choose to share with us may be used in policy documents, government consultations, campaigns and media pieces which will be publicised. However you will not be identified by anything we include.

Measuring the impact of the COVID-19 pandemic on trans health & trans health care

This study would like to learn from trans people aged 16 or older how you are personally affected by the situation around COVID-19 and what consequences this has for your physical and mental health. The survey will take you up to 20 minutes to complete and is completely anonymous. The survey is available in different languages, click the ‘menu’ option to pick one.

Call for input to a UN thematic report: The impact of COVID-19 on the human rights of LGBT persons, communities and/or populations

Several Special Procedure mandate holders will focus their forthcoming thematic reports to the United Nations Human Rights Council or the General Assembly on the impact of the COVID-19 pandemic on the enjoyment of human rights. In order to facilitate responding to questions by Special Procedures, a joint questionnaire has been developed including a list of common questions and specific thematic questions.

The report of the Independent Expert will focus on the impact of the COVID-19 pandemic on the human rights of lesbian, gay, bisexual, trans, and gender diverse (LGBT) persons, communities and/or populations.

Impact of coronavirus on the charity sector

The IoF, along with NCVO and CFG, and supported by PwC, are working together to understand the current and future financial impact of coronavirus on the charity sector.

Covid-19 Health and Care Workforce Survey

Covid-19 has had a significant impact on every corner of the UK. Every community within our society and every sector across our economy has faced unprecedented challenges. Now, more than ever, it is vital we learn from employers and staff, just how much the pandemic has impacted our health and care workforce.

Health and Care Women Leaders Network: Impact of COVID-19 on Staff Working in Health and Care Sectors

The Health and Care Women Leaders Network delivered by NHS Confederation has launched a new survey to understand the impact of COVID-19 on all health and care workers across the NHS, social care and the independent sector.

How have you or other BME workers been treated at work during the coronavirus crisis?

There has been a lot of discussion about the impact of coronavirus on BME people but often the voices of working people are missing from this.

How have Covid-19 lockdown restrictions impacted your relationship with family members or intimate partners?

This survey is being carried out to help Galop identify how LGBT+ people’s relationships, both intimate and familial, have been affected by the Covid-19 restrictions. The results will shape the support that is being provided and help identify future support priorities.

Gender-based violence against LBTI women/persons in COVID-19

ILGA World is collecting data on gender-based and domestic violence experienced by lesbian and bisexual women and non-binary, trans and intersex women and persons (LBTI women/persons) in the context of the COVID-19 pandemic.

LGBTQ+ Lockdown Wellbeing Survey

Outlife want to know how lockdown has affected you mentally and physically.

Accessing contraceptive services during U.K coronavirus lockdown

Closes 12th June. Decolonising Contraception is a collective of Black & people of colour working in Sexual & reproductive health and advocating for better health equality.  They have received reports that people are struggling to access adequate sexual health & contraceptive services since the ‘lockdown’ on March 2020 in the U.K. Please fill out the survey above and assist them in better understanding and advocating for your needs.

Lockdown Behaviour Survey from THT and 56Dean St. 

Terrence Higgins Trust and 56 Dean Street are teaming up for this confidential survey about lockdown and sexual health testing. It should take 2-3 minutes and is aimed at adults in the UK.

The impact of the novel coronavirus pandemic on the LGBTIQ+ community directly affected by cancer

For this survey Live Through This would like to hear from those in our community directly affected by cancer. This includes experiences or concerns around screening, investigations and diagnosis. It also includes those receiving or due to receive treatment, chronic care or who are survivors or palliative patients. They do not need to hear from partners or carers at this time but they may help you complete the form if you wish.

The Patients Association survey

The Patients Association wants to find out how patients, people with long term conditions and others are experiencing their treatment and care during the COVID-19 global pandemic.

The Co-SPACE Study

The Co-SPACE study will tell us how families are coping during the covid-19 (coronavirus) pandemic, and what parents can do to help support their children’s mental health.

Services for Men Survey

COVID-19 is increasing the demand for some services, reducing the demand for others – and, in many cases, making it harder to deliver them. As part of their work to support men’s health during the current pandemic, Men’s Health Forum want to publicise the services that are out there so that men can find the services they need more easily. To this end, they are keen to understand the impact of COVID-19 on organisations supporting men’s health and also wanting to survey what services are available for men at this time – whether they relate directly to COVID-19, or to the consequences of self-isolation, or whether they relate to other men’s health issues – which remain no less urgent as a consequence of COVID-19.

Experiences of expecting a baby or being a parent to a very young child during Covid-19

Critical Research are conducting this survey on behalf of the charities Home-Start, The Parent Infant Foundation, Best Beginnings, and the Maternal Mental Health Alliance.
They are keen to hear about your experiences of expecting a baby or being a parent to a very young child during Covid-19. It should only take about 10 minutes to complete and is being conducted in accordance with the Market Research Society Code of Conduct. All answers will be held in the strictest confidence and you will not be contacted as a result of taking part.

Covid under 19

The Centre for Children’s Rights at Queen’s University Belfast is working with many organisations around the world to gather the views and experiences of children and young people on their rights during the COVID-19 (Coronavirus) pandemic.

Understanding the needs of Young Adults following the COVID-19 outbreak

Young adults aged 16+ years living in the UK are invited to take part in an online research project to look at the impact of social distancing measures on different aspects of your life and the lives of other young adults, how people are coping during this period, and what has been particularly difficult to deal with.

Birmingham City Council Covid-19 Impact Questionnaire

Birmingham City Council understand that it has been a difficult time for everyone and want to hear from you about the impact that COVID-19 and the lockdown measures have had on your health and wellbeing. Whether you’re an individual, family, student, retired or newly arrived in the city, your opinion counts.

Young Carers and Young Adult Carers survey about coronavirus

This survey is for Young Carers and Young Adult Carers to complete.
A young carer is someone under 18 who helps look after someone in their family, or a friend, who is ill, disabled or misuses drugs or alcohol.
A young adult carer is someone aged 18 to 25 who helps look after someone in their family, or a friend, who is ill, disabled or misuses drugs or alcohol.

This survey is designed to help Carers Trust better understand your needs, the impact of coronavirus on you and what support you need. The survey will be used to help influence decision makers like the government, highlight the needs of young carers and young adult carers, in the media and on social media, and will help Carers Trust to think of new ways of supporting young carers and young adult carers.