Dementia in LGB&T Communities

The Dementia Challenge for LGBT Communities

Dementia is at the top of the national agenda, as reflected in the National Dementia Strategy; by 2025, according to the Alzheimer’s Society, there will be an estimated 1 million people with dementia in the UK. However, there is no specific reference to LGB&T issues in the National Dementia Strategy, despite the fact that LGB&T communities may also have other protected characteristics that demand distinct social care support.

Such concerns were the focus of a roundtable held in late 2014 by the National LGBT Partnership with the National Care Forum, Sue Ryder and the Voluntary Organisations Disability Group. The aim was to consider the needs of LGB&T people with dementia and how the social care workforce could provide more appropriate support. This paper is based on that roundtable discussion.

The Dementia Challenge for LGB&T Communities

Dementia Care and LGBT Communities: A good practice paper

The UK is home to an estimated 1.2 million older lesbian and gay people in the UK, yet they are an invisible population and rarely acknowledged by service providers and commissioners.

This issue was summarised by the Social Care Institute for Excellence briefing, Working with lesbian, gay, bisexual and transgender people, which describes how “commissioners and providers don’t often think about LGBT people when planning and delivering services, but this does not mean that LGBT people are not using services or do not want to use services.”

Such concerns provide the backdrop to this short case study-based report, which is the second piece of work from our partnership that explores specific support for LGBT people with dementia.

Dementia Care and LGBT Communities: A good practice paper

Dementia, Equity and Rights

This resource was published in April 2016

Anyone, regardless of gender, sexuality, race, ability, or socio-economic background can develop dementia; however some groups have higher prevalence rates and experience greater disparities in the care they receive and the support that is provided to carers.

This publication seeks to highlight the main issues arising for people with dementia and carers from the following population groups: the oldest old, young onset, people with disabilities, black and minority ethnic people (BME), women, LGB&T people, and different socio-economic populations. It considers the prevalence of dementia within each group and the needs and experiences of people living with dementia and carers within each protected characteristic group. It also provides information, recommendations and resources for commissioners, service providers, service users and their carers to ensure that the best possible care and support to people living with dementia and their carers is expected and delivered.

Dementia, Equity and Rights

LGBT: Living with Dementia

This resource was published in August 2017

LGB&T people may feel that lots of the information and advice they are given about Dementia, or lots of the support available, isn’t right for them. They may have, or feel they have, different circumstances to heterosexual or cisgender people. This could be because of their experiences, living arrangements, the support they receive and who they have around them.

In this resource The Alzheimer’s Society explain how people can live well with dementia. They talk about the things LGBT people can do to remain independent, get the emotional and practical support that’s right for them, and plan for their future. We worked with The Alzheimer’s Societies to develop this resource.

LGBT: Living with Dementia

Supporting an LGBT person with Dementia

This resource was published in August 2017

People living with dementia will experience a range of challenges. Many of these will not be affected by the person’s sexual orientation or gender identity . However , there are certain challenges that lesbian, gay , bisexual and trans people with dementia are likely to face. We worked with The Alzheimer’s Societies to develop this resource for people supporting or caring for LGBT people with dementia, whether or not they themselves are LGBT.

Supporting an LGBT person with Dementia

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